Event starts in
Date
4th - 6th May 2021Time
2:00PM Onwards (IST)
About
IEEMA Smart Grid division is organizing a webinar on Electricity Infrastructure Cyber Security & Resilience: “SUPPLIES CHAINED”, which focuses on Trusted Vendors ecosystem and comprehensive Risk Management in the supply chain. The webinar will primarily focus on Risk management, Ransomware Threats, Trusted Vendors and developing a Trusted Supply Chain ecosystem etc.
To ensure that the utilities' Informa on risk stance is well posi oned to withstand emerging cyber threats and accelerate digital transforma on, a careful strategy to rebuild a resilient supply chain is indispensable. Rethinking and upda ng manufacturing, opera ons, and supply chains have accelerated even more during 2021. Today, developing an ecosystem of Trustworthy Vendors, Technologies, Products, Systems and Solu ons is the most crucial impera ve for the Government, Utilities and even the industry.
Global Rare Disease Conference
Blueprint for rare diseases
Date
28 Feb 2021
Time
5:45PM - 9:30PM IST
Peep into the prevalent and emerging Cyber Threat Landscape
Peep into the prevalent and emerging Cyber Threat Landscape
Peep into the prevalent and emerging Cyber Threat Landscape
Peep into the prevalent and emerging Cyber Threat Landscape
Peep into the prevalent and emerging Cyber Threat Landscape
Peep into the prevalent and emerging Cyber Threat Landscape
Meet our Panelists
Sylvie Veilleux
Sylvie Veilleux is a strategic global technology leader who has delivered transformative, data-driven solutions that helped companies like Apple, Salesforce, Mozilla and Dropbox thrive through hyper-growth and maturation. As the former and first CIO of Dropbox, Sylvie built a world-class IT function to enable the growth and scale of the company pre and post IPO. Veilleux is an independent director for Europcar Mobility Group, H1 and Cinchy, and an independent advisor for Solvo Cloud and Next Trucking. She is a member of Accel’s Technology Council, Lightspeed Venture Partners CIO Advisory Network. She was recognized by Forbes CIO NEXT 2021 Top 50 and Technology Magazine Top 100 Women in Technology in 2021.
Dia Bondi
Elevating the Impact of Leaders
For nearly two decades, Dia Bondi has coached CEOs, innovators, and ambitious professionals-helping them align and activate people teams and cultures toward shared goals and making it possible for them to elevate their impact and use communications as a strike point for their leadership.
read more...
Dia has worked with world-class brands like Intel, Mozilla, Salesforce, Dropbox, and Agilent Technologies helping their leaders have more impact. She’s coached changemakers at the Clinton Global Initiative and the Commonwealth Games Federation and countless Entrepreneurs in Technology and social impact who are in the midst of a level up.
As a coach and story strategist, she’s worked with the Olympic Committees of Chile, Turkey, and Brazil and helped Rio de Janeiro secure the 2016 Summer Games. She is an Activator in the SheEO Network and a Faculty member of Harbour Space- a University of Technology, Entrepreneurship, and Design.
Accelerating Women After attending auctioneering school for fun, she translated the techniques she learned into a program that prepares women to ask for more and leave nothing on the table, called 'Ask Like an Auctioneer'. That project’s goal is to help 1MM women to ask for more and get it and has produced her mission to put more money and decision-making power in the hands of women so we can change everything for all of us.
Dia’s confidence is infectious and she has had an impact in a range of industries and loves to work with leaders at their most critical communications moments and when stakes are high. She's been covered in CNBCMake It and Forbes.
Meera Gopalakrishnan
Meera Gopalakrishnan is the Vice President of Global Marketing and Product Management at Integra LifeSciences. Her responsibilities include global portfolio strategy, brand strategy, product management as well as lifecycle management for $1B Codman Specialty Surgical business.
Meera has over 20 years of experience in the medical technology industry. Prior to joining Integra LifeSciences, Meera was with Philips Healthcare where she progressed through various marketing and commercial leadership roles spanning cardiology, radiology and advanced life support businesses. She also holds a Doctoral Degree in Biomedical Engineering.
read more...Meera is passionate about diversity & inclusion. She was appointed as one of the founding members of Integra’s Women’s Leadership Council, an advisory group to Integra’s CEO on furthering diversity and inclusion. She serves as a sponsor for Integra’s Women’s network in Boston and co-leads various affinity groups. In 2021, Meera was awarded the Healthcare Businesswomen Association (HBA) Luminary Award. This award is in recognition of her contributions as a role model to the women of Integra, active mentorship across the organization, advancing other women’s careers and your overall dedication to the healthcare industry.
Dawn Serpe
Dawn has been with Collabera for close to eight years and is Senior Vice President responsible for Collabera’s North American Strategic Accounts team, Collabera’s Marketing team, RFP proposal team, and leads the Talent & Culture Committee, Diversity and Inclusion and the Collabera Women’s Leadership Advisory Board where she drives programs and initiatives for the women of Collabera to help them with career advancement and mentorship.
read more...Prior to joining Collabera Dawn worked for some of the largest publicly held firms in the industry including Robert Half International and KForce where she was responsible for National Accounts and managing large regional offices in the NY/NJ area.
Dawn’s expertise lie in business development, relationship building, and understanding our clients' needs in order to help them solve for their solution and staffing needs. Dawn has been recognized by SIA in the Global Power 150 – Women in Staffing list two years in a row as well as she is an active member of the women executive group Chief as well as WITI and participates on numerous partnership and advisory committees.
With over 25 years of IT solutions industry experience, she believes that Collabera is working with their clients and doing some amazing things in the digital transformation space and is proud to see how far Collabera has come in providing their clients with total talent solutions and strategies.
Dawn and her team are here to partner with clients, discuss their issues and concerns to provide solutions and assist them in their journey. She emphasizes that there is a big difference between being a provider who listens and provides solutions that are right for the company you are working with and understanding what their needs in order to bring value adds to the table. Being a trusted partner who brings innovative ways to do things, as well as discussing ideas is what makes Collabera a very different total talent solutions provider.
Moderator - Sabby Nachiyaar
Sabby Nachiyaar is Vice President- IT at Collabera and is driving technology transformation for theGlobal Business Services (GBS) business unit. Additionally, she heads the Women in Tech @ Collabera (WiT@C) initiative and leads the Agile IT Center of Excellence (CoE) and is a member of the Women’s leadership Advisory Board’s mentoring subcommittee. Sabby has been instrumental indriving process optimizations and leading core product development. She has spearheaded key cross-functional initiatives including the successful rollout of ERP systems across 11 countries, carve-out of legal entities as well as integration of acquired companies.
read more...Her background also includes large-scale vendor consolidation projects for Collabera’s clients. Sabby’s current areas of focus include legacy application modernization, building cloud-native applications, and taking the lead in automation through RPA initiatives.
Sabby’s leadership experience includes establishing and coaching non-IT business functions such as GBS Operations, Audit & Compliance, and the IT PMO organization. Sabby has served as Head of Operations at a bay area startup that built a blockchain agnostic supply chain platform to pioneer global Trade Finance transactions as well as managed several proof-of-concept projects for banks.
She has a Master’s degree in Biomedical Engineering from Columbia University, an undergraduate degree in Biomedical Engineering from MIT, Manipal and executive education from Cornell and Harvard eDX.
Meet our Panelists
Sylvie Veilleux
Sylvie is a a strategic global technology leader who has delivered transformative, data-drive solutions that helped companies like Apple, Salesforce, Mozilla, and Dropbrox thrive through hyper-growth and maturation.
Dia Bondi
Dia is a Communications Catalyst, Coach, and Strategist who helps C-level executives, innovators and change makers across the globe create an impact, capture the hearts and minds of their teams and rally behind their shared goal.
Meera Gopalakrishnan
Meera is the VP of Global Marketing and Product Management at Integra Life Sciences with a wide range of responsibilities from global portfolio and brand strategy, product and lifecycle management. She is a founding member of Integra’s Women’s Leadership council and sponsor for Integra’s Women’s Network in Boston, MA.
Dawn Serpe
Dawn is a member of the Collabera Executive Management Committee, and Senior Vice President who leads our North America Strategic Accounts Team, Marketing Team, and RFP Proposal Team. She also leads the Talent and Culture Committee, Diversity and Inclusion Initiatives, and the Women’s Leadership Advisory Board (WLAB).
Moderator - Sabby
Sabby is the Vice President of IT Applications of Collabera. She is the head of Collabera’s Women in Tech (WiT@C) and Agile Center of Excellence, and member of our Women’s Leadership Advisory Board (WLAB).
About the Event
Together for Rare: Blueprint for Rare Diseases in India
Why GLOBAL RARE DISEASE Conference?
Rare diseases pose unique challenges to society and healthcare systems. Globally, some 7,000 rare diseases have been identified. Positively, several significant events in the global policy agenda have helped to give more momentum to rare diseases, such as the UN 2030 Agenda and Sustainable Development Goals (SDGs) and the drive towards universal health coverage, which are centered around leaving no-one behind, as well as the recent establishment of the NGO Committee for Rare Diseases. Despite such advancements, many countries including India do not have tailored policy frameworks today and there still is a large unmet medical need for Rare diseases. However, at the same time we have some best practices from countries like France, Germany etc.
A shift in mindset is required whereby rare diseases are not considered in isolation but rather regarded as a significant component within health policy frameworks. Considerable barriers exist in terms of awareness, prevention, access to appropriate care, delayed diagnosis and limited or non-existing treatment options. To add on to the listed burdens, we have COVID19 pandemic which has given shivers to the global health system altogether. The rare disease patient community has played a critical role, elevating the patient voice and mobilizing legislation to support the development of programs that address the needs of patients with rare diseases. If we apply the international estimation of 6% to 8% of population being affected by rare diseases, to India, we have between 72 to 96 million people affected by rare diseases in the country. Over 80% of rare diseases are genetic in origin and hence disproportionately impact children. Almost 50% of new cases are in children and are responsible for 35% of deaths before the age of 1 year, 10% between the ages of 1 and 5 years and 12% between 5 and 15 years. The impact on families is often catastrophic in terms of emotional as well as financial burden, as the cost of treatment is prohibitively high. A supportive policy environment is therefore necessary to foster care and management and empower patients and their communities in India. India has a draft Rare Disease Policy waiting for release but due to the pandemic situation, all the planning has gone for a toss. MoHFW is working reviewing, collating, and updating the recommendations received post draft policy was released in the public domain for review.
GLOBAL RARE DISEASE Conference- Together for Rare: A Blueprint for Rare Diseases in India
It is a pioneering initiative designed as multi-stakeholder initiative and collaboration focused on rare diseases in India. The initiative is foresighted and seeks to prioritize the needs of people suffering with Rare Disease by bringing together diverse partners, discussing challenges, innovation and strengthening the nation’s commitment towards delivery of greater impetus and better outcomes for all. It is expected to generate dialogues, build synergies, and bring forward a concrete and actionable comprehensive charter as an outcome and reinforce commitment on it for the cause.
Journey so far
Considering the importance of Rare Diseases for achieving health goal of India, PPHF facilitated a review process to understand the policy and program from leaders in the central and state government, experts, and industry along with review of secondary and published information. The purpose of the review was:
To analyze the available evidence and develop some priority action agenda for Rare Diseases in India. The key features of the process included:
- Identification of key stakeholders to understand their prospective on this topic and
- Literature Review- Review of accessible publications, journals, reports etc. on public domain
- Identification of key evidence gaps, where additional knowledge needs to be generated
- Preparation of a summary report and action agenda
Creating a supportive policy environment was one of the critical solutions that came up from the review process. Since then, PPHF has been actively working with its partners including international, national, and State players for organizing Regional and Global consultations to better understand critical drivers, strategies and solutions for Rare Diseases. To view the complete review document, please visit the resource section.
Both PPHF and FICCI collaboratively facilitated a review meeting for structured discussions around the draft rare disease policy released by the Government in the public domain for inputs. Over 40 diverse stakeholders, representing government, non-governmental organizations, civil society, corporate leaders, industry networks, bilateral development agencies, patient organizations, medical institutions, academia, researchers, clinicians and Rare Diseases experts, met for the Roundtable Discussion on “Draft National Policy for Rare Diseases” on February 7, 2020 using a structured participatory meeting methodology called Open Space Technology. The outcome of this discussion was a consensus document reflecting key recommendations to strengthen the Draft National Policy for Rare Diseases prepared from detailed deliberations by a diverse group of respected experts and stakeholders in Rare Diseases. The recommendations were submitted to the MoHFW, PMO and Finance Minister for further action. For detailed document, please visit the resource section.
PPHF and GRID Council, with support from Takeda Pharmaceuticals convened an international webinar on “Resilience approach towards rare disease policy in India” on 4th August 2020. The agenda for webinar was Resilience Approach Towards Rare Disease Policy in India highlighting the need to resurface and prioritize Rare Diseases as health priority in the COVID era. The webinar represented a combination of very high-level speakers from USA and India from sectors like Academia, industry, ministry, public health organizations, and patient advocates to help us better understand the opportunities and challenges for prioritization and management of Rare Diseases. For detailed report, please visit the resource section.
PPHF, jointly with the State Government of West Bengal, co-powered by Takeda Pharmaceutical, organized the virtual consultation on rare diseases for eastern states of India on 12th December 2020. The consultation was the first in the series - "The Blueprint for Rare Disease in India initiative", an attempt to enhance policy commitment to prioritize access, investment, and partnerships on rare diseases in India. Initiatives associate partners included ORDI, LSDSS, Cure SMA Foundation of India (Strategic partners), GRID council (Research partner) and Institute of Child Health, Kolkata (Knowledge partner). For the recommendations that came out from the event, please visit the resource section. And to view the event recording, click here. .
The second edition of the virtual conference, under the initiative “Blueprint of Rare Diseases in India” was held in collaboration with Government of Chandigarh and Punjab, for northern India on 22nd January 2021. The initiative is co-powered by Takeda Pharmaceutical and supported by Japan Embassy, Institute of Child Health, Kolkata, GRID Council, LSDSS, ORDI, RDIF, and Cure SMA Foundation of India. The recommendations from the consultation are to be released soon. To watch the event recording, click here.
The last regional event is scheduled for 16th February 2021 with the Government of Karnataka. The initiative is co-powered by Takeda Pharmaceutical and supported by Japan Embassy, Institute of Child Health, Kolkata, GRID Council, LSDSS, ORDI, RDIF, and Cure SMA Foundation of India. Click here to Register.
Recognizing the complexity of the issues around Rare Disease, we will bring a wide range of experts, champions, and leaders together from disciplines such as public health, industry body, NGOs, PAGs, IT, Media, COE, MOH&FW, Women and child development, Tribal Affairs, Ministry of State etc, NGOs and UN, bi-lateral and unilateral agencies, and others. The platform will highlight best practices across India and globally, learn from cross-country experience, and create sensitize stakeholders on prioritizing rare diseases. Following the conference, PPHF along with its partners will work towards compiling and submitting policy and programmatic concrete actions to the Government as part of supportive plan.